Wendy,
I feel the same as you about the PET scan. It's nice to see what's up with our whole body, rather than just the chest. In addition, I personally feel, regardless of the stage and treatment (surgery or radiotherapy), oncologists should recommend a prophylactic course of chemotherapy for all cancer patients to try to kill off any cancer that is not yet seen. Some patients may not want the chemo and the current guidelines consider the risk/cost vs benefit of further treatment, siding on the cost/risk side. I fear the insurance companies have more say in the guidelines than the medical professionals.
All we can do as patients is demand evaluation of anything that might feel like it could be a new cancer. X-rays can detect masses and are cheaper than CT or PET scans. We have to be our own best advocates!
Tony

Its been 5 months already and so far I have had no other tests done. I will go for a cat scan I guess every 6 months of the chest . Wish it was every 4 and a pet in between to put my mind at ease

Cats every 3 months for at least 1 yr. Then every 6 months and somewhere in-between a pet scan. Follow for 5 years at least

Wendy,
If you or 'the patient' had a successful resection and no lymph nodes were involved, then a CT every six months for the first 2 years and annually thereafter is the current guideline. The VPI is a predictor of less than optimal survival time, which means the disease is more likely to recur. At least, that's what I get from the literature.
Tony

Have they tried a course of steroids?