Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLungCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLungCancerTeam Member asked a question 💭
May 28, 2024
 · 
Reactions

Answer Summary

Members shared widely varying PET scan schedules in response to a question about imaging frequency, with experiences ranging from every three... Read more

Members shared widely varying PET scan schedules in response to a question about imaging frequency, with experiences ranging from every three months to just one scan since diagnosis, depending on cancer type, stage, treatment plan, and insurance coverage. Several members explained they rely more on CT scans with contrast or MRIs for regular monitoring, with some noting they developed reactions to contrast or that their doctors reserve PET scans for specific decision points like diagnosis, treatment response, or restaging rather than routine surveillance. A recurring theme was that scan frequency is highly individualized based on medical need, with some members finding comfort in frequent imaging while others trust their care teams to determine the appropriate timing.

A MyLungCancerTeam Member

I get a CT with contrast every three months. I'm on infinzi.

August 9, 2024
A MyLungCancerTeam Member

I said I have a PET/CT every 3 months, but my medical provider is the Nashville VA, where they have their own equipment and aren't limited by Medicare or commercial insurance cost restrictions.
Unless Medicare has increased their limit, I believe it is 3 PET scans total. Usually used for diagnosis, then to monitor effectiveness of treatment, then for re-staging or surveillance post-treatment. There was talk of increasing the number to 4. Additional scans are at the discretion of the Regional Medicare Director on a case-by-case basis.

August 9, 2024
A MyLungCancerTeam Member

I have had 1 PET scan 6 CT scans and 1 MRI for the brain. I am newly diagnosed but have a few issues going on at one time. I don't think I will have any sooner then September for lung. The rest are all being removed by surgery. So I guess case by case. Wish you the best.

August 9, 2024
A MyLungCancerTeam Member

Thank you praying you continue to stay stable. God Bless you.

August 9, 2024
A MyLungCancerTeam Member

Thank you Sur. I have stage 4 lung cancer on Keytruda .

August 8, 2024

Related Questions

View All
A MyLungCancerTeam Member asked a question 💭
Houston, TX

A MyLungCancerTeam Member asked a question 💭
Marshfield, WI

A MyLungCancerTeam Member asked a question 💭
Fort Worth, TX

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In