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Real members of MyLungCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 27, 2023
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Answer Summary

Members rallied around someone frustrated by months of testing without a clear lung cancer diagnosis, with many sharing their own painful... Read more

Members rallied around someone frustrated by months of testing without a clear lung cancer diagnosis, with many sharing their own painful journeys through similar limbo, including wait times ranging from weeks to nine months before getting answers or starting treatment. Several members emphasized the emotional toll of waiting while cancer potentially progresses, and many offered practical advice including trusting your instincts, advocating firmly with doctors who move too slowly, and considering switching to a different cancer center if care feels inadequate. A recurring theme was the community's understanding of how mentally exhausting diagnostic delays can be, balanced with encouragement to stay patient, keep pushing for answers, and lean on faith and support while navigating an overwhelming process.

A MyLungCancerTeam Member

If you cancer center is small they are probably busy. Mine is small also and starting to get real busy. But the care is excellent and the doctor thinks I might beat it. I have had stage 4lung cancer since January 1st of this year. Good and bad days, but now more good days. Trust your instinct.

December 28, 2023
A MyLungCancerTeam Member

Sending positive vibes for April! Happy New Year!

December 30, 2023
A MyLungCancerTeam Member

That’s terrible, there is no reason you shundnt have a diagnosis by now. I live in the missouri ozarks. I was scanned immediately this was march 2018 and notified within a cpl days that it was cancer in right upper lobe, no treatments to start went and had tumor and upper lobe removed on may 18 2018, report was surgeon got it all no chemo needed. Well in July I received a new pet scan and it had mastastised into lower lobe and left lung and a lymph node in my neck and my left kidney so then I was classified as a stage 4 NSCLC & started on chemo infusions every 3 weeks of 4 different chemo drugs and continued this till November 2020, that’s when I got a all clear scan, the only place it lit up was my kidney but stayed no activity or changes with it since 2018. So now I get scanned every 6 months, I believe the k e I got last month maybe#19 which is a lot of scans. There’s my story gotta make it 5 yrs. Cancer free then I can ring that bell right now I’ve got 3 yrs under my belt. I wish you the best of luck. Get in touch with your dr and request a diagnoses

December 30, 2023
A MyLungCancerTeam Member

Wow, sorry to hear that. Mine went so fast it was overwhelming. End of Aug to my Dr. felt short of breath. within a week, had all the scans. and saw a pulmonogolis and surgeon and had surgery on Sept 15. Maybe it depends on where you live. I am in Ral. Nc area and there are hundreds of Drs. here and 4 hospt. what kind of Dr. are you seeing. Hope they will get you in fast.

December 30, 2023 (edited)
A MyLungCancerTeam Member

I'll try😊

December 31, 2023

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