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A MyLungCancerTeam Member asked a question 💭
Montgomery County, Tennessee

They all say,

"Hi, my name is ____________ and I live in ______________. Some of my interests include Symptoms, Treatments, News, Lifestyle, Research, Living with lung cancer, and Lung Cancer Information. I'm happy to meet everyone in the MyLungCancerTeam community!

The only difference is the name and location for each.
It's a little suspicious to me. I have submitted the issue to the My Cancer support team.

UPDATE/CORRECTION
I received a response from the site support team explaining… read more

October 14, 2022 (edited)
 · 
Reactions

Answer Summary

Members raised concerns about suspicious new member introductions that all followed the same generic template, prompting discussion about... Read more

Members raised concerns about suspicious new member introductions that all followed the same generic template, prompting discussion about whether the site was being infiltrated by scammers or bots until administrators clarified that it was a new automated onboarding feature designed to help members quickly add introductions. The conversation evolved into widespread frustration with this impersonal format, with many members emphasizing that meaningful support requires basic information like cancer type, stage, treatment status, and whether someone is a patient or caregiver, which the generic template fails to provide. A recurring theme was the community's desire to help newcomers feel safe and supported while also gathering enough context to offer relevant, accurate guidance, with several members advocating for a customizable questionnaire that allows new members to share what they're comfortable with rather than checking automated boxes that say nothing meaningful about their journey.

A MyLungCancerTeam Member

Yay! And Blessings for 2023. I’ve been living with my CA son for 2 months. My Hawaii family were here for Christmas and New Year celebrations. They just flew back this morning.

January 3, 2023
A MyLungCancerTeam Member

Hi Patricia2
I agree with Dodi you are the bestest

January 28, 2023
A MyLungCancerTeam Member

Thanks Patty! I am back in TN now and next week renew the scans, treatment, tests, doctors, more doctors, more tests. But I feel great and I'm happy. Thanks for always being there for us! You're the bestest!! ( I am a teacher, you know.)

January 27, 2023
A MyLungCancerTeam Member

Thanks Patty,
You and I agree. I assumed the Administration had some knowledge of lung cancer patients. It is a very complex disease and moral support is not enough. The first thing I want to know is what Stage and who is treating you. Both my brothers would be dead by now if I hadn’t stepped in to get them to Stanford, or UC SanFrancisco. They both had been misdiagnosed, and fought me, not wanting to drive 1-2 hours. They had an attitude change when they got proper care. One died 23 years later, the other is 11 years out, no sign of cancer. I have talked to every close friend about going to the right place. Even people who live close to Ucla don’t want to drive in traffic for 30 miles.
So I am not going to respond to new people except a friendly welcome and request of how they are doing.
I thinks it is good this topic is in the open now.
I am dealing with snow leaks today, but have a very knowledgeable guy helping with it. I just hired him and 2 other guys to repaint my master bath, they found the leak and the reason for it. I like the head guy a lot.
Good wishes. Ready for Christmas? Lee wrapped a bunch of presents for me too. Oh oh, I better get wrapping.
Mickey

December 20, 2022
A MyLungCancerTeam Member

I agree with Tony and Patricia2 - eliminate the automated question format in place now and replace it with fill in answers like patient vs. caregiver, newly diagnosed vs. established patient, type & stage currently. Also age or age range category. Some people when joining this site like to begin looking for people in their age range or possibly those located within their respective state. Since there are so many individuals on this incredible site, it's impossible for us to follow or meet everyone so maybe changing the initial format might help us narrow the navigation process. I, personally, am not a fan of the current way new people are presented to the site with pat answers that are not descriptive to the individual. Anybody else agree?

November 1, 2022 (edited)

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Toronto, CA

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