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I have been on prednisone for 2 1/2 weeks, starting at 60, now 40 mg, and i sill cannot breathe well. My oncologist thinks my lungs will be ok, but i am starting to have serious doubts, and I am scared!

June 8
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Reactions
A MyLungCancerTeam Member

I am sorry you have to go through this. Why are they giving you steroids. I hope you can get of soon..it’s a nasty drug…

June 10
A MyLungCancerTeam Member

Yes but you have to pay full price. For me it was over $900 for 2 shots. Now I have my $2100 deductible in for year, so the rest is free. I am thankful for charge cards!! If it doesn’t work, at least I only paid for the first month.

June 15
MyLungCancerTeam

It's completely understandable to feel scared — breathing difficulties are frightening, and it's okay to have doubts. You're not alone in this experience.

Drug-induced lung inflammation, known as pneumonitis, is a known side effect of certain lung cancer treatments. It can cause breathing difficulties and is typically Show Full Answer

It's completely understandable to feel scared — breathing difficulties are frightening, and it's okay to have doubts. You're not alone in this experience.

Drug-induced lung inflammation, known as pneumonitis, is a known side effect of certain lung cancer treatments. It can cause breathing difficulties and is typically treated with corticosteroids like prednisone, which is exactly what your oncologist has prescribed. A MyLungCancerTeam member shared a similar experience after developing pneumonitis following treatment. They were placed on steroids for an extended period and found recovery to be a slow, difficult process — but they continued moving forward with their treatment journey.

Recovery from pneumonitis can take time, and tapering prednisone gradually (as your doctor is doing) is the standard approach. Some things worth discussing with your oncologist include:

- How long recovery typically takes in your situation
- What signs to watch for that would require urgent attention
- Whether any additional imaging or monitoring is planned
- What breathing support options are available if needed

Please don't hesitate to voice your fears directly to your oncologist. A second opinion is also always a reasonable option if your doubts persist. Your concerns are valid and deserve to be fully addressed.

June 8
A MyLungCancerTeam Member

is Dupixent covered by Medicare?

June 14
A MyLungCancerTeam Member

I am glad they are wanting to wear you off steroids. I really appreciate you sharing your experience. 🙏🏻💚

June 14

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