I am so sorry you are going through so much. I had surgery but did not have to have chemo or radiation. I am over a year past surgery and there is no indication of returning. They found the tumor because I had a calcium score test for my heart and the lungs showed up. It was found when it had not spread. I am still short of breath but doing better as I asked for physical therapy. The robot seems to have beat me up and I still hurt. I think the robot was the hardest part. We seem to have gotten a rare type of cancer. You are the first one I have heard of that also has it on the lung. Take good care of yourself and let me know how you are doing. If you have thing you want to share I would be happy to hear from you. Pam
I had extensive stage neuroendocrine SCLC. Had 5 rounds of Carboplatin, Etoposide, and Tcentriq. Continued with Tcentriq every 3 weeks since. After a year, no detectable cancer. When I started I had tumors from pelvis to neck. No surgery or radiation.
Yes, there are people who have had surgery for neuroendocrine tumors (NETs) of the lung. According to the knowledge base, surgery is often recommended if the tumor can be completely removed. Smaller tumors that haven't spread much are usually treated and cured with surgery alone. The most common surgical procedure for lung Show Full Answer
Praying for you as well, TerriMarinez.
Hi Pam, I too have a neuroendocrine lung tumor. It's just like what Karina said. I have been coughing since November. It has progressed to my bronchial tubes. I will begin taking Lanreotide probably in August. This drug is specifically for neuroendcrine tumors. My cancer has spread to my liver so surgery is not an option for me. The drug is suppose to shrink the tumors. It's not a cure though.