Has anyone experienced severe weakness in legs and arms from immunotherapy, and what can be done when the oncology team won't see a patient experiencing serious side effects?
I'm so sorry your sister is going through this. The severe weakness, falls, lethargy, and cognitive issues she's experiencing are deeply concerning Show Full Answer
Has anyone experienced severe weakness in legs and arms from immunotherapy, and what can be done when the oncology team won't see a patient experiencing serious side effects?
I'm so sorry your sister is going through this. The severe weakness, falls, lethargy, and cognitive issues she's experiencing are deeply concerning and understandably frustrating when you can't get immediate answers from her oncology team.
Understanding Immunotherapy Side Effects
Immunotherapy can cause serious side effects when it over-activates the immune system, potentially causing it to attack healthy tissues in other parts of the body, including the nervous system. Common side effects include:
* Fatigue
* Weakness
* Nausea
* Fever
* Joint pain
* Headache
However, more severe reactions can occur, especially autoimmune reactions that affect various organs and systems.
What You Can Do Right Now
The oncology team's refusal to see her until she's discharged from rehab does seem concerning given the severity of her symptoms. Here are some steps to consider:
* Request that the rehab facility's physician consult with the oncology team about her current condition
* Ask if a palliative care specialist can evaluate her to help manage symptoms and improve quality of life
* Document all symptoms, falls, and changes in her condition with dates
* Request a family meeting with the rehab team to discuss her lack of progress
* Consider getting a second opinion from another oncologist, even if it means telehealth initially
Cognitive Issues and Multiple Treatments
The cognitive problems could stem from multiple factors - brain radiation, the cancer itself spreading to the brain, or treatment side effects. This combination makes her situation more complex and urgent.
Advocating for Better Care
You're right to push for answers. If the current team won't respond:
* Contact the hospital's patient advocate or ombudsman
* Ask your sister (or whoever has medical power of attorney) to sign releases so you can speak directly with her doctors
* Request urgent communication through the patient portal if available
* Consider whether she needs to be evaluated at a comprehensive cancer center
Your instinct that something isn't right is valid. Keep advocating for her care.
April 11
Join
Your Privacy Choices
