Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLungCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLungCancerTeam Member asked a question 💭
Oak Harbor, WA

Sister went on this new treatment from Amgen tarlatamab
I’m trying to locate others who have used this newest immunotherapy
I would like to know if anyone has tried this and has had bad side effects from it?
My sister had small problems for the 1st 2 doses, then the 3rd dose more problems, besides fatigue, weakness and difficulties that go with sadly stage 4 cancer =(
Fell down several times in 2 weeks ~couldn’t get herself up, Just sadly it has really made this difficult situation much… read more

March 20
 · 
Reactions
A MyLungCancerTeam Member

Thank you Karen! And I will continue to pray for you and your sister. Many hugs back to you🥰

March 24
A MyLungCancerTeam Member

I’m so sorry to hear about your sister. I hope they find the proper treatment for her. Please keep us informed and sending healing hugs and prayers❤️

March 21
A MyLungCancerTeam Member

Thank you Laura! I am new to all of this web site info plus very overwhelmed with what happened to my sister during all of this that was supposed to help her in this difficult time 😑
Appreciate you! Saw you Str me going through this terrible disease as well 🙁
We will be praying for you as well and hope you get into remission as we hope & Pray for my sister at this difficult time.
Hope your treatment will go well without complications!
Keep me posted on how you’re doing too!
I’m about to write a nice nasty gram to insurance whom don’t want to move my sis because of extra costs 🙄
It’s all crazy! Sending big hugs to you 💞

March 22
MyLungCancerTeam

Has anyone experienced severe side effects from tarlatamab immunotherapy?

I'm so sorry to hear about what your sister is going through. That sounds incredibly difficult for both of you.

Tarlatamab is a newer immunotherapy that works by bringing lung cancer cells and immune cells closer together so the immune system can Show Full Answer

Has anyone experienced severe side effects from tarlatamab immunotherapy?

I'm so sorry to hear about what your sister is going through. That sounds incredibly difficult for both of you.

Tarlatamab is a newer immunotherapy that works by bringing lung cancer cells and immune cells closer together so the immune system can better target the cancer. Because it's relatively new, there may be fewer people who have shared their experiences with it yet.

Common side effects that have been reported include:

* Fatigue and weakness
* Muscle and joint pain
* Nausea and digestive issues
* Changes in blood test results

However, like other immunotherapies, tarlatamab can sometimes cause more serious reactions. The severe weakness and mobility issues your sister experienced—especially the falls and needing hospitalization—sound like they may be related to the treatment affecting her overall strength and possibly her nervous system or muscles.

Important considerations:

It's crucial that her medical team is aware of all these symptoms, which it sounds like they are since she's now in rehab. Sometimes immunotherapy side effects can be managed by adjusting the dose, delaying treatment, or adding supportive medications.

Given that she was one of only three patients starting this treatment at that office, her doctors are likely monitoring her very closely and learning from her experience.

You might find it helpful to connect with others on MyLungCancerTeam who are navigating similar treatment decisions. Sharing experiences and asking questions in the community could help you find others who have tried this medication.

Wishing your sister strength in her recovery.

March 20

Related Questions

View All
A MyLungCancerTeam Member asked a question 💭
Ohio, OH