Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLungCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Sense I was diagnosed with lung cancer stage 4. I got radiation done. But Sense then I haven't had don a MRI or CT scan. I would like to know what's going with that.

September 1, 2023
 · 
Reactions

Answer Summary

Members reassured someone with stage 4 lung cancer who hadn't received imaging after radiation that regular CT or PET scans every three to six... Read more

Members reassured someone with stage 4 lung cancer who hadn't received imaging after radiation that regular CT or PET scans every three to six months are standard practice, with many sharing they were automatically scheduled by their doctors and urging the original poster to ask directly or consider seeking a second opinion. Several members described their own treatment experiences, including one taking Zalkori (a targeted therapy pill), others on chemotherapy and immunotherapy, and one explaining that scans are often delayed until after several chemo rounds to avoid seeing misleading inflammation rather than true response. A recurring theme was the importance of self-advocacy, bringing a list of questions to appointments, asking for clarification when needed, and remembering that doctors work for the patient.

A MyLungCancerTeam Member

Because it’s your body, a second opinion is appropriate in my opinion. Next month, I’m requesting a Pet Scan as I won’t see my cancer treatment doctor until next May 2024 for my annual lung cat scan. Doctors are knowledgeable but they don’t know Everything!

September 5, 2023
A MyLungCancerTeam Member

My husband also has stage 4 lung cancer (Non small cell adenocarcinoma) He had 10 rounds of radiation and is now going through chemotherapy. He won't have any scans done until he has completed 4 rounds of chemo. When we asked the doctor he said to do a scan now would only show inflammation as the chemo makes the cancer inflamed. After 4 chemo treatments, each three weeks apart, he will have a scan. It will either show the cancer has shrunk or it hasn't. And those results will determine our next plan.

Please ask your doctor what the plan is for you. Everyone is different and there is no set-in stone treatment for cancer. Make a list of questions to take with you to your next appointment and write down the doctor's answers. If you don't understand the doctor's answer, ask him/her to explain. They are working for you and it's your life. If someone is available to go with you, please take them, it's good to have two sets of ears. I pray your next doctor's appointment gives you the answers and treatment plan that is perfect for you. God bless you.

September 4, 2023
A MyLungCancerTeam Member

With my stage 4 lung cancer, I finished radiation and then began chemo and immunotherapy together. Every 3 weeks and I’ve had 47 treatments so far. I have a CT every 9-12 weeks and a PET every 6 months. Best of blessings to you on your journey.

September 16, 2023
A MyLungCancerTeam Member

I'm not getting any chemotherapy. I'm taking medicine. It's called zalkori. I go see the doctor every 2 months.

September 3, 2023
A MyLungCancerTeam Member

Stage 4 you need a different oncologist. My stage 4 is stable so I get CT every 3-6 months and labs done monthly.

September 2, 2023

Related Questions

View All