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Didn't want biopsy or petscan...doc said could get false readings ..so I said I just want it out. March 2022: upper lobe nodule...Pathology came back with adenocarcinoma stage 1. 15 lymph nodes around it clean. No treatments! July 2022: upper lobe clear, new small one in middle. Scans every six months, no growth...next scan is in October 2023. I felt great in March 2022....it was out. The july 22 scan of new nodule sent me spinning and by Sept 2022...depression kicked in. I'm strong… read more

August 8, 2023 (edited)
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Answer Summary

Members rallied around someone grappling with depression over a year after their Stage 1 lung adenocarcinoma diagnosis, with many sharing that... Read more

Members rallied around someone grappling with depression over a year after their Stage 1 lung adenocarcinoma diagnosis, with many sharing that the emotional toll of scanxiety, recurrence fears, and treatment decisions is very real and often requires medication, therapy, and leaning on faith or community. Several members opened up about their own experiences with additional nodules after initial surgery, describing a range of outcomes including scar tissue, slow-growing spots treated with radiation instead of more surgery, and recurrences in multiple lobes, while emphasizing the importance of PET scans and biopsies for accurate diagnosis before making treatment decisions. A recurring theme was the power of self-advocacy, staying connected to loved ones as motivation, and choosing treatments that preserve quality of life, with many encouraging the original poster to trust their instincts, work closely with their medical team, and focus on being present for their daughter's senior year.

A MyLungCancerTeam Member

Joanne,
Have you seen the survival rates for stage 1 adenocarcinoma lung cancer?
As of Aug '22 they were: Under 50: 83.7%, Ages 50-64: 67.4%, 65 and older: 54.6%.
That is at the 5-year mark, which only means they lived at least 5 years after beginning treatment. God knows they are probably all still alive today. Besides that, those figures are for people that started treatment 5 years before the end of that study. There have been numerous new drugs, surgical methods and radiation equipment developed and approved since then. So these figures are higher for those of us that just started last year.
This is my second go around with a stage 4 diagnosis. The first time was for throat cancer in 2020. I am still free and clear of that and continue to have a scope put down my throat every 3-4 months, besides the PET/CT scans. I'm already half-way to the 5 year mark. By the way, you hear the "5 year" as the outer limit, but that is as long as they follow patients. After that, you have the same chance of living as the common person.
Stay positive!
Tony

August 16, 2023
A MyLungCancerTeam Member

Joanne,
PET scans are highly accurate and a biopsy is as accurate as it gets. Active tumors glow on the PET scan. It's called FDG uptake, meaning the tumor is absorbing the glucose solution they put in your vein before the scan. Cancer loves sugar (glucose), so it sucks up the FDG, which is radio-luminescent, so it "glows" on the scan.
I wouldn't let someone cut on me without a biopsy, if one can be taken. If not, then I'd have to see the tumor glowing on a PET scan before I had surgery. But I would not let anyone do surgery on me without these diagnostic tools.
They do not "give false results"! The worst that can happen is a false negative on the PET scan and you go another 3 months before the next one. A biopsy is certain proof, so no questioning the results.
Please, talk with your psychiatrist. You obviously haven't got your anxiety under control. A positive attitude is the most important thing you can work on to hope for a positive outcome.
Tony

August 16, 2023
A MyLungCancerTeam Member

Sorry you're going through this! I'm going through exact same! (Read my story) Removed middle right lobe, and wedge from lower a year and a half ago. 18 lymphs tested negative. Said I am cancer free so no further treatment. Then gene test came back and said I was highly likely for recurring cancer so started adjuvant chemo for only four rounds to head it off. Finished treatments in July '22. Of course three month, then six month scans. Found another "nodularity" in right middle this past Jan. They believe to be scar tissue. πŸ™πŸ» So far no changes in that so I'm forever hopeful! Maybe yours could be scar tissue?
Anyway, I feel where you are coming from πŸ˜” My anxiety just these last few months have suddenly skyrocketed too! Saw my PCP yesterday and she's sending a 'script ti see if it helps. I hate taking any meds, but at this point I'll welcome it! LOL! PLEASE keep us in the loop! I'll be praying for you! I'll also post any changes with me. I am feeling confident that it's just scar tissue, but scanxiety def gets the best of me! My next scan is October '23 too! LETS BE POSITIVE AND KICK CANCERS ♋️ A$$!! NOT WELCOME HERE!! πŸ’£πŸ’₯πŸ’ͺπŸ’ͺπŸ™πŸ»πŸ™πŸ»πŸ™πŸ» GOD BLESS US ALL! πŸ™πŸ»πŸ™πŸ»

August 8, 2023
MyLungCancerTeam

It sounds like you had a lung nodule discovered during a COVID scan in December 2020, and follow-up scans showed growth by January 2021, leading to your decision to have it removed. Here are some relevant points from the knowledge base:

- Detection and Monitoring: Lung nodules can be found incidentally during scans for Show Full Answer

It sounds like you had a lung nodule discovered during a COVID scan in December 2020, and follow-up scans showed growth by January 2021, leading to your decision to have it removed. Here are some relevant points from the knowledge base:

- Detection and Monitoring: Lung nodules can be found incidentally during scans for other conditions. Regular follow-up scans are crucial to monitor any changes in size or appearance.
- Biopsy and Removal: If a nodule grows, a biopsy may be performed to determine if it is cancerous. Removal of the nodule, along with surrounding tissue and lymph nodes, can be a treatment option.
- Post-Surgery: After removal, ongoing scans are typically scheduled to monitor for any recurrence or new developments.

For more detailed information, you can refer to the resources on lung nodule detection and treatment.

August 2, 2024
A MyLungCancerTeam Member

Thanks so much..

September 10, 2023

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