Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLungCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My question to the above is it possible to have sarcadosis? They seem very similar. Any one else have this thought. Thanks. Athy

August 15
 · 
Reactions
MyLungCancerTeam

It's a really thoughtful question — could a PET scan showing increased mass size, high uptake, and a hilar node mass actually be something other than cancer progression?

The honest answer is: it's possible, but tricky to sort out without more testing. PET scans have a small false-positive rate of around 6.5%, meaning Show Full Answer

It's a really thoughtful question — could a PET scan showing increased mass size, high uptake, and a hilar node mass actually be something other than cancer progression?

The honest answer is: it's possible, but tricky to sort out without more testing. PET scans have a small false-positive rate of around 6.5%, meaning inflammation can sometimes "light up" similarly to cancer activity.

Here's what's important to know:
- High uptake on a PET scan is not automatically confirmation of cancer spread
- Inflammation can mimic cancer on imaging
- A biopsy is often the most reliable way to confirm what's actually going on
- A combination PET-CT scan can give doctors even more detail to work with The best next step would be to raise this exact question with your oncology team. Ask them directly whether a biopsy of the hilar node could help clarify the picture. You also have every right to seek a second opinion on your scan results — that's always a valid option.

Your instinct to question and dig deeper is a good one. Keep advocating for yourself!

August 15

Related Questions

View All
A MyLungCancerTeam Member asked a question 💭
Toronto, CA