Thank you for all the love and support from everyone

I get treatment at VAMC in Cincinnati. I have established a relationship with a case manager that understands and has instructed me to send him questions that he will send to oncologist. I'm going to hold him accountable - don't mess with veterans - we've paid the price for freedoms!

Dr. should know how you feel about your treatment. Speak up for yourself we all have done this.

I had already completed my first cycle of chemo. But I got a second opinion from MSK. I didnt have to go there. I had a complete copy of my records sent to MSK amdcser up a timecto do a video tele conference.

There is a lot to know about cancer and treatment options. Sometimes all thayt information can be over whelming. There can also be many variables to consider.

I had to be in the hospital for 5 days for 6 cycles of chemo. I had 16 days between the start of each cycle. While in the hospital I had so many doctors and med studentscI didnt knowcwho myvprimary Oncologist or Hemotologist was. I too relied on the internet for answers. But, I also found other people who were receiving chemo for information. One of my nurses told me me she had had cancer. She a great resource for practical support and information. But, I had to also understand, I was notcthe only patient. Some times that's a hard pill to swallow. I kept a journal with a ton of questions and left a lot of room for answers.

Hey Bill: I hear your complaint about your doctor. Yes, it's common to have communication challenges with medical people. It's good to get your questions and concerns on paper,so your ready. To get your needs met with cancer or any major disease takes deliberate effort. Very hard.to focus on the best treatments and then the consequences.. it's a journey. Takes time. Keep the faith. It's good to tell your doctor your feelings. Possibly, he has a system in place for his patients. Someone who can take the time to talk to you. I spoke to a nurse navigator who helped me understand my care plan.
It's normal to be frustrated/angry. But for you health sake look for ways to get help. You take care.