Answer Summary

Members with ROS1-positive lung cancer mutations shared their experiences with targeted TKI therapies, with one member describing success on... Read more

Members with ROS1-positive lung cancer mutations shared their experiences with targeted TKI therapies, with one member describing success on Rozlytrek after Xalkori caused liver issues, while another noted that Entrectinib has been effective despite persistent side effects like tingling and balance problems. Several members opened up about the profound isolation and loneliness that comes with cancer, feeling distanced from family and friends who seem afraid or uncomfortable, with many finding connection and support through online communities. A recurring theme was reclaiming small joys and normalcy, whether through brief social outings, embracing baldness with humor and style, or simply having others listen without judgment.