Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLungCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 28, 2025
 · 
Reactions
A MyLungCancerTeam Member

I had a 10 cm tumor removed from right uppper and right middle lung lobes in 2000. I opted for follow up with concurrent chemo and radiation but only because I had a tiny bad margin near the windpipe. If my margins had been good, then I would have skipped the chemo and radiation for sure. That was 25 years ago. For the first few years I had CT twice a year and PET every year but then about year 5 I reduced down to yearly CT. At 10 years or so I went to yearly chest x-ray. Then at 21 years the chest x-ray showed something fuzzy and I did a CT scan which showed 2cm recurrence. I had that spot blasted with SBRT radiation. It is now gone. I am back on CT every 6 months now. Last spring I had a new 1.5cm spot blasted with SBRT radiation and waiting to see if it completely goes away too.
Treatment for lung cancer is not to be taken lightly. Each decision to treat, especially with radiation, limits future treatment options because you can't radiate the same spot twice. I will be 71 in March. Working on year 25 of survival.
Wishing you the best of luck. <3

January 28, 2025
A MyLungCancerTeam Member

Thank you for sharing your story with me! And congratulations on the obvious success of treatment and on your great attitude about it all.

January 28, 2025
A MyLungCancerTeam Member

I had ADENOCARCINOMA of my upper right lobe. It was Stage 1, 1.2 cm at the widest point. I have the lobectomy, and 12 lymph nodes removed that had no cancer at all. No chemo, no radiation. Contrast CT scans 3 times year 1; all clear. Now it is 2 contrast CT scans every year; no evidence of disease. I am relieved with every scan, as the longer I stay cancer free, the greater my chance of cure. I am 77, go to UCLA.

January 28, 2025
MyLungCancerTeam

A lobectomy is a common treatment for malignant carcinoid tumors of the lung, especially if the tumor is localized and hasn't spread. This procedure involves removing the affected lung lobe. After surgery, monitoring through regular imaging tests and follow-ups is crucial to check for recurrence or complications. If you're Show Full Answer

A lobectomy is a common treatment for malignant carcinoid tumors of the lung, especially if the tumor is localized and hasn't spread. This procedure involves removing the affected lung lobe. After surgery, monitoring through regular imaging tests and follow-ups is crucial to check for recurrence or complications. If you're considering or have undergone this treatment, discussing your specific case with your doctor is essential.

January 28, 2025

Related Questions

View All