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Real members of MyLungCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLungCancerTeam Member asked a question 💭
Mequon, WI
January 10, 2025
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Answer Summary

Members shared varied experiences with Imfinzi immunotherapy, with some reporting manageable side effects like fatigue, cough, and shortness... Read more

Members shared varied experiences with Imfinzi immunotherapy, with some reporting manageable side effects like fatigue, cough, and shortness of breath attributed partly to radiation, while others described more severe reactions including extreme joint pain, fluid retention, severe neuropathy, and AFib requiring additional medications like steroids, gabapentin, and Lasix. Several members found relief through steroid treatment for joint pain and expressed gratitude for relatively mild experiences, with one member noting they remained largely asymptomatic throughout treatment. A recurring theme was the wide variability in side effects, the importance of communicating symptoms to medical teams, and mutual encouragement among members navigating treatment with both hope and honesty about difficult days.

A MyLungCancerTeam Member

I'm currently on Imfinzi once a month, I honestly don't feel like I'm experiencing any issues with it at all, I have been extremely lucky with my treatment program. Chemotherapy was pretty uneventful, radiation was,by itself was not bad. The only issues came when I was receiving Chemotherapy, and radiation therapy at the same time, I had nausea severe enough to spend one night in the hospital. As I said earlier I believe that I have been extremely lucky inasmuch that I have gone over a year and a half with being pretty much asymptomatic with both the cancer and the treatment. I only wish everyone could have the same. I just live the best way I know how. That's the point just live like you always have, if possible. If not, do your best for yourself, it's not being selfish to think of yourself first, you are the one who's living this life.

January 15, 2025
A MyLungCancerTeam Member

I felt guilty during radiation and chemotherapy. They said I would burn, I didn’t, they said I’d loose my hair, I didn’t. God blessed me so much during those treatments. I felt so sorry for those people who didn’t have the results I had.

January 16, 2025
A MyLungCancerTeam Member

Thanks!

January 15, 2025
A MyLungCancerTeam Member

So glad to hear you are stable SueSeidner

January 15, 2025
A MyLungCancerTeam Member

I had it the last 2 months and then about a month or so when I was done. The Steroids were miracle drugs! Have another scan end of month and a Dr appointment on Feb 5th. The tumor shrunk and as of now I am stable. Keeping the faith!

January 15, 2025

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