Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLungCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLungCancerTeam Member asked a question 💭
Van Wert, OH

I have multiple chronic illnesses and see different specialists. Suddenly, now that I’m on alectinib, they are refusing to treat me/deferring treatment to oncology. Which is useless because oncology is refusing to treat anything because they consider everything, including side effects from the meds, as “pre-existing conditions.” I’m left just feeling like an annoyance to everyone.

July 29, 2024
 · 
Reactions
A MyLungCancerTeam Member

AJ I am so sorry that you are in this position. You are not an annoyance! Maybe the oncology folks can tell you who to see for your other issues if your current other specialists and PCP won't. Medicine has become so specialized that it is ludicrous at times. I have 2 primary cancers: lung and thyroid. I tried to see an oncologist and they refused to see me stating that thoracic surgeon is following lung cancer and endocrinology is following thryoid cancer so that I don't need an oncologist. Fortunately, I am ok with that I'm as I have a great PCP who handles any medically related issues that come up. Just crazy that oncology did not even want to see me for a consult. I do realize that there are many people who need them more than I do as I am stage 1 on both cancers. Best wishes you can get this resolved.

July 30, 2024
A MyLungCancerTeam Member

@aj2- Hi Aj, I would start back with your pulmonary doc and thoracic surgeon to get questions there. Don't give up. You have to have faith . Even go back to your PCP to get help. Prayers 💞🙏

July 30, 2024

Related Questions

View All
A MyLungCancerTeam Member asked a question 💭
Cotopaxi, CO