Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLungCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Stage 1B - resection done. Margins are clear. Nodules in right lung. Plan is to do surveillance every 6 months. Should radiation or adjuvant chemo be done?

June 8, 2024
 · 
Reactions

Answer Summary

Members strongly encouraged someone concerned about their Stage 1B lung cancer surveillance plan to seek an oncologist, with several members... Read more

Members strongly encouraged someone concerned about their Stage 1B lung cancer surveillance plan to seek an oncologist, with several members expressing alarm that a thoracic surgeon was leading treatment without referring to a cancer specialist after surgery. Many members shared that tumor boards typically assign a medical oncologist immediately after diagnosis to coordinate care, discuss treatment options like chemotherapy or immunotherapy, and order critical pathology testing for biomarkers and genetic mutations that guide personalized therapies. A recurring theme was the importance of self-advocacy, with members urging the original poster to call Medicare directly for second opinion coverage, request an oncologist referral without delay, and stay proactive in asking questions until all concerns are addressed.

A MyLungCancerTeam Member

I take it the lymph nodes were benign. Otherwise they would have recommended chemo.
I have squamous cell carcinoma and waited and watched nodules grow for 2 1/2 years before the largest grew to 9-10mm and we could get a biopsy. I have one nodule that doesn't light up on the PET scans, but has grown from 7mm to 9mm over the last 2 years. We're still watching it. So, it sounds like your current wait and see treatment is about right.
It still pays to have a second opinion.
Stay positive!
Tony

June 14, 2024
A MyLungCancerTeam Member

I think you all have given me strength. I will ask for a referral to an oncologist. You are right. An oncologist should now be leading the team; the surgeon should not.

June 8, 2024
A MyLungCancerTeam Member

Pat703 something doesn’t sound right to me. Someone should have contacted an oncologist or at least gave you a phone number so you could have contacted one. I would be concerned also. If it were me I would contact an oncologist, just saying.

June 8, 2024
A MyLungCancerTeam Member

It is Invasive well-differentiated adenocarcinoma (1.3 cm), acinar predominant. They actually did two resections. They removed the first, and decided to remove again because they wanted to make sure to get all tissue. 4 lymph nodes were also removed.

The nodule of concern in my right lung is in lower lobe. The size in 2023 was 6mm and in 2024 is 8mm. I already have an appointment for CT scans in November.

June 12, 2024
A MyLungCancerTeam Member

Hi Pat,
Sorry this is a couple days late. I didn't come on the site.
By "type of cancer" I meant adenocarcinoma, squamous cell carcinoma or large cell carcinoma. Those are the major sub-types of NSCLC. Like I said, the tumor should have gone to pathology for typing and to see if there are any biomarkers or genetic mutations that can be addressed in case the other nodules are cancerous. This is done by biopsy when possible and is preferable to waiting to do it after the surgery. Chemotherapies are approved for the specific sub-types of cancer. Immunotherapy is approved for specific biomarkers the patient has and "targeted" therapies address genetic mutations of the cancer strain itself.
Of course, you need an oncologist to determine all this and present you your options.
How large are the nodules in your right lung?
Are they in different lobes or all in one?
How large was the tumor in the left lung?
Tony

June 11, 2024

Related Questions

View All
A MyLungCancerTeam Member asked a question 💭
Toronto, CA