Answer Summary
Members with stage 4 lung and gynecological cancers shared their treatment experiences, with many describing combination chemotherapy regimens... Read more
I agree with Janis. I discussed my transfer with both the oncologist and case manager. They appreciated my honesty and went the extra mile to actually set me up with my first appointments with Callahan and making the transition smooth. My original oncologist is still involved but my primary is the one at callahan. If I need to be seen at unmc in the future, it will bounce back to the original oncologist. It's nice they play well together lol
@A MyLungCancerTeam Member never be afraid to find the place that offers the care you want. I wasn't terribly thrilled with UNMC (buffet cancer center). They are very competent and offer very good treatment/resource options. But they are very busy and don't have time to talk to you as much as I liked. I transferred to Callahan Cancer center which is closer to home. It offers much more patient comfort based care. I feel heard, my oncologist isn't rushed and I'm familiar with the area. UNMC is associated with Callahan so everyone is still in the mix, but I don't have the headache of dealing with it lol. My new oncologist just tells me what they said, what she thinks and we go from there lol.
@A MyLungCancerTeam Member since I was a UNMC patient already, I have a gynecological oncologist who was treating the gynecological cancers (only one in the state, she's awesome), a thoracic surgeon, "my" medical oncologist and what's known as the "tumor team". I now also have my new medical oncologist but UNMC reviews my tests/scans and offers my doc their opinions. So I actually have the best care I could ask for even with the transfer. Nebraska is working on connecting all the hospitals to ensure that kind of collaboration for every patient. Even though the gynecological cancer is a 2nd primary, it isn't the priority (lung cancer would kill me faster) and wouldn't be treated very differently anyway. Only change would be to replace pemetrexed with taxotere. Pemetrexed is likely to also work on gynecological just not top choice.
BreRob your local oncologist shouldn’t have a problem with it. I told mine on Friday that I was going Wednesday for a 2nd opinion to the UW carbone cancer center and he was glad I told him because he said some won’t tell him because they think he will get mad. I asked him if he would work with them if that’s the route I decide go. He said he would with no hesitation.
BreRob, I’m glad that UK gave you hope. Are they a research cancer center? Some people have no compassion. My oncologist said he would work with the UW if that’s what I choose.