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Real members of MyLungCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 2, 2022
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Answer Summary

Members shared widespread experiences of developing thyroid problems during cancer treatment, particularly with immunotherapy drugs like... Read more

Members shared widespread experiences of developing thyroid problems during cancer treatment, particularly with immunotherapy drugs like Keytruda, chemotherapy agents like carboplatin, or combinations of both, with most reporting they will need thyroid medication for life. Several members described fluctuating thyroid levels requiring frequent dosage adjustments of levothyroxine, ranging from 50mcg to 150mcg, as their bodies struggled to stabilize during active treatment. A recurring theme was acceptance and mutual support around this permanent side effect, with many finding hope in the fact that while their thyroid function may not return to normal, medication can keep levels stable and allow them to focus on the bigger victory of cancer remission.

A MyLungCancerTeam Member

Yes, my treatment killed my thyroid. I will be on thyroid meds for life. Immuntherepy attacks not only cancer but organs as well. On a happy note I am in remission!

February 9, 2023
A MyLungCancerTeam Member

Hi Debbie
That was the answers my Dr gave me on my Thyroid medication to.

December 3, 2022
A MyLungCancerTeam Member

Yes Gary,
It looks like the thyroid is unable to stay at the same levels. Every 3 weeks prior my infusion, blood tests have being done and results are showing thyroid level issues. So I am receiving different levothyroxine dosages
125mcg / 150mcg / 100 mcg. It occurs with Keytruda also until thyroid stabilized.
It could be a malabsorption of the drug/ hormonal imbalances/?

December 3, 2022
A MyLungCancerTeam Member

My chemo treatment has been working. It's the bodies different issues that have come into play like thyroid, skin, and leg swelling. All of which are under control. Keeping the cancer cells stable on the lung and brain clear of nodules. I've been fortunate so far but as we all know what cancer is capable of. Positive and strong. We got this together

August 20, 2023
A MyLungCancerTeam Member

How do you feel with your chemo drug? I had thyroid cancer 24 years ago . It was removed so now I’m on .75 milligrams of Levothyroxine . It’s not a problem for me . I just wish I could say that about lung cancer🥲

August 19, 2023

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Connecticut, CT

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