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A MyLungCancerTeam Member asked a question 💭
Montgomery County, Tennessee

Who has 1st hand knowledge of the infusion pump protocol. How long is a cycle? How long on and off the pump? What side effects did you experience and anything that I can do to minimize them. How effective was it?

I have squamous cell lung cancer and will start chemo in the next 3 weeks. On or shortly after 15/9/22.

September 2, 2022
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Answer Summary

Members shared detailed experiences with 5-FU chemotherapy protocols, with one member explaining their regimen of immunotherapy and cisplatin... Read more

Members shared detailed experiences with 5-FU chemotherapy protocols, with one member explaining their regimen of immunotherapy and cisplatin on day one followed by a four-day 5-FU infusion and 17 days of rest, repeated for six cycles. Several members described managing side effects through anti-nausea medications like Zofran and Phenergan, medications to boost white blood cells, and pain management for joint issues caused by Taxol, with many finding the emotional toll of repeated treatments comparable to preparing for combat missions. A recurring theme was the importance of having caregiver support, staying flexible as treatment plans adjust based on tolerance, and maintaining hope through the grueling process while leaning on faith and encouragement from others who understand the journey.

A MyLungCancerTeam Member

My ex husband on his last treatment rite now for squamous cell carcinoma in left lung.then scans and see.using same chemo carboplatin and taxol.

July 17, 2023
A MyLungCancerTeam Member

Hello Andree,
Thanks for the info, but things changed just after that last post about the Zofran. I had my 1st infusion 2 weeks ago. I am now getting Keytruda (immunotherapy), followed by carboplatin, and then Taxol, as chemotherapy. They put Zofran in the pre-meds for the nausea. I got a prescription for Phenergan for here at home. Turns out I didn't have much nausea this time. Hopefully it will stay that way.

I didn't have the port put in after all.
I hope you are doing well and thanks for keeping an eye out for me.
Tony

October 7, 2022
A MyLungCancerTeam Member

Hi Roseann!
I saw your husband was going to have a CT scan at the end of the week. You ought to know that the effectiveness of today's infusion won't peak for 14-21 days, so whatever shows up on the CT will continue to be affected by it and continue to improve the outcome for some time to come. I pray it's all good news from the scan!
Stay positive and God bless you!
Tony

July 17, 2023
A MyLungCancerTeam Member

my wife helps me a lot i like your analogy - i'll use it as i have another in fusion tomorrow i get infusions every week being calling tax carb could be wrong but i think people put it's meaning the chemo is al li got left new liver a stroke i have no choice 4 cancers me thinks i'm going to get that bullet that i could have got in war

April 20, 2023
A MyLungCancerTeam Member

Hi Mike,
By pax, do you mean paclitaxel? The trade name for it is Taxol. If so, that is what I had, but I got infused every 3 weeks. The infusion took an hour for the Taxol and 40 minutes for the carbo. I got 30 minutes of Keytruda first, then the other 2. I was in and out most days in 4 hours. The Taxol was so hard on my joints and ligaments I had to take oxycodone to make it through 4 cycles. There is no way I could have gone weekly. Everything I've read about it says it is usually given every 3 weeks.

I didn't think about the feelings before having to go for another infusion compared to that feeling before going back out on a combat mission. It is almost the same. I actually had to talk myself into going back for more radiation treatment when it got rough. In combat, having the guys around you, it was more like, ok, suck it up and let's get going.

I hope you are doing well. I read you were having trouble walking. Do you have someone to help you with meals?

Stay positive my friend!
Tony

April 20, 2023

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