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Real members of MyLungCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 26, 2022
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Answer Summary

Members confirmed that worsening cough and shortness of breath after radiation is a common experience, with many describing persistent... Read more

Members confirmed that worsening cough and shortness of breath after radiation is a common experience, with many describing persistent symptoms months or even years later due to radiation-induced lung scarring or pneumonitis, a condition where the lungs react to scar tissue as if it were a foreign substance. Several members shared practical tools that have helped manage symptoms, including over-the-counter Mucinex or mucus relief medications, prescription Benzonatate for cough suppression, codeine cough syrup for nighttime relief, and oxygen therapy when breathing becomes severely compromised. A recurring theme was the importance of staying in close contact with oncology and pulmonology teams, advocating for timely scans like CT or PET to distinguish between scar tissue and active cancer, and recognizing that recovery timelines vary widely, with some experiencing gradual improvement and others requiring long-term oxygen support.

A MyLungCancerTeam Member

I finished Radiation in November.
In January I started coughing a lot I could not keep my oxygen level up.
Went from using No ox To full time oxygen. One of the side effects of radiation is Pneumonitis. That is what I got. I am feeling a little better now and can keep my oxygen level up with No help From oxygen tank.

February 18, 2023
A MyLungCancerTeam Member

I had 30 radiation treatments and 15 chemo. Finished them first of Nov, 2023. My breathing has gotten so bad I can’t walk to my mailbox. I’m on oxygen almost 24/7. I have stage 1 small cell confined to upper right lung nodule. Confined to nodule only. Brain Scan last week is clean. Pet scan 6 wks ago once I was finished with treatments showed 75% of cancer gone, said a small spot remained. Not sure if it is scar tissue or cancer so I had 3 more chemo treatments. My next pet scan is Feb 26. I’m not comfortable with this wait, and the answer of “ not sure if spot is cancer or scar tissue????? Does the breathing ever get better? Someone mentioned Viagra was used to improve breathing when also suggesting from COPD? Has anyone heard this or been on it for breathing....... I’m a female!! Lol

January 15, 2024
A MyLungCancerTeam Member

May need to be doing PET scan

February 10, 2023
A MyLungCancerTeam Member

I just finished radiation a week ago. I had 5 treatments of 3D radiation and no side effects or cough.

February 9, 2023
A MyLungCancerTeam Member

Yes, I do & it can be violent. I think they call it exacerbations. My oncologist & Pulmonologist thinks it's from radiation. This seems to be worse than the cancer. My last treatment was 5 years ago. I had 30 radiation treatments.

July 2, 2022

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