GO2 Foundation for Lung Cancer recently announced the launch of its Global Lung Cancer Registry — a repository of lung cancer data collected from researchers, clinicians, and people living with lung cancer. Similar to the World Health Organization’s (WHO) Global Cancer Observatory, the Global Lung Cancer Registry will make lung cancer data from around the word available to the public.
This registry expands on GO2 Foundation’s existing national registry. By creating a worldwide registry, the foundation aims to provide researchers with richer, more comprehensive data from which new lung cancer treatments can be developed.
“The goal of the Global Lung Cancer Registry is to help researchers connect the dots between people with lung cancer around the world – finding hidden connections and turning them into answers to important questions,” said Laurie Fenton Ambrose, GO2 Foundation co-founder, president, and CEO, in a press release. “And, importantly, the registry allows people impacted by the disease to contribute directly to global research and become a critical part of the effort to find new treatments for their own disease.”
One of the registry’s main focuses is to allow individuals to contribute to research by sharing their own unique experiences with lung cancer. Those participating can answer confidential surveys about their diagnosis, treatment, quality of life, and more. Contributors can decide who can access their information and how it can be used. They can then compare data about their experiences with lung cancer — stripped of identifying information — with other people’s.
Beyond educating people with lung cancer about the disease, the registry will connect them with clinical trials, registry studies, and lung cancer researchers and clinicians.
“Lung cancer can make you feel powerless and out of control of your life, but by being part of the GO2 Foundation Global Lung Cancer Registry, I know I am not only doing something to help myself, but I could be helping other patients all across the world as well,” said Evy Schiffman, a GO2 Foundation National Ambassador Council member who has been diagnosed with lung cancer and also acted as a caregiver.
To learn more or join the GO2 Foundation’s Global Lung Cancer Registry, visit lungcancerregistry.org.