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A MyLungCancerTeam Member asked a question 💭
Germany
November 25, 2024
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Members rallied around someone feeling hopeless after being told chemotherapy was their only option for stage 4 adenocarcinoma, with many... Read more

Members rallied around someone feeling hopeless after being told chemotherapy was their only option for stage 4 adenocarcinoma, with many sharing their own treatment journeys involving combinations of chemo, targeted therapies like Tagrisso and Rozlytrek, and immunotherapy like Keytruda. Several members emphasized that having a low PD-L1 status or certain mutations determines treatment eligibility, with mutation testing taking over a month but opening doors to effective targeted drugs that have led to shrinking tumors and improved quality of life. A recurring theme was reframing stage 4 as a chronic condition rather than a death sentence, with members celebrating milestones like a year of survival and encouraging hope for future plans like travel.

A MyLungCancerTeam Member

Still good if treated with chemotherapy because pdl1 is too low for immuntherapy?

November 25, 2024 (edited)
A MyLungCancerTeam Member

Thank you both very much for sharing.
I was wondering if it will be possible someday to go on vacation again. Not sure about flying. We live in Europe. Wanted to travel overseas and see a bit of the World. Have Pleural Effusion.

November 28, 2024
A MyLungCancerTeam Member

Hi I was diagnosed with stage 4 NSCLC in May 2024. I have tumors in my rt lung, liver and ribs. I've done 4 rounds of chemo ( not as bad as I had feared) and now take a targeted medicine tagrisso. My tumors are shrinking and I'm hopeful. My doctor says he no longer considers stage 4 as terminal it's a chronic health condition. That made me feel better, like YES I'm going to live. Best of luck!

November 28, 2024
A MyLungCancerTeam Member

That is what the doctor told us, too. Immuntherapy would be pointless. They said they will check for mutation but we still have to wait. When did you find out it would be possible for you to get treated with immuntherapy?

November 25, 2024
A MyLungCancerTeam Member

I have stage 4 adenocarcinoma and I'm doing good. Prognosis for 5 years is pretty good with good quality of life.

November 25, 2024

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