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A MyLungCancerTeam Member asked a question 💭
Providence, RI

I've had a breathing test, a full body scan, chest x-ray and now I'm seeing a ENT specialist. Is this normal?

November 1, 2023
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Answer Summary

Members shared their experiences with the extensive testing process before receiving a lung cancer diagnosis, with most emphasizing that a... Read more

Members shared their experiences with the extensive testing process before receiving a lung cancer diagnosis, with most emphasizing that a definitive diagnosis requires either a tissue biopsy or surgical resection to examine cells, not just imaging alone. Several members described living with ground glass nodules, with some being monitored through yearly CT scans for stability and others eventually requiring surgery when changes appeared concerning, underscoring the importance of consistent follow-up. A recurring theme was the emotional challenge of waiting through multiple tests without clear answers, met with supportive advice to actively communicate with pulmonologists and oncologists about next steps and advocate for biopsies when appropriate.

A MyLungCancerTeam Member

Hi Lynn - I'm sure it's overwhelming to have so many tests with no definitive answer yet! The only way to get a "for certain" diagnosis of lung cancer is to have a biopsy (obtain tissue with a needle) or do a surgical resection (incision) to get tissue to examine what the cells look like. There are many laboratory stains and tests that must be done on the tissue to tell what kind of cancer it is - whether it started in the lung or elsewhere. Sometimes, however, it is very difficult to get a sample of tissue, and the MD's may prefer to watch and wait to see if the scans show changes that are concerning. Hope that helps, and I truly hope that your situation does not show a progression to cancer! Hugs!

November 11, 2023
A MyLungCancerTeam Member

Hi Lynn
I had ground glass nodules. They were considered stable for several years. Last year on my yearly CT scan it came back as concerning. After all the tests, I had a Wedge resection on October 21, 2022 and a lobectomy of my right upper lobe on October 25, 2022, as the cancer was larger than expected.
If they are not recommending any further treatment at this time, I would just be sure you get at least yearly CT scans to see if any changes. I hope that helps.
Pam

November 9, 2023 (edited)
A MyLungCancerTeam Member

My pulmonary specialist said that in a decade, this can become full blown lung cancer. I have been doing every test the doctor asks me to do. I'm taking it as it comes, I've no choice.

November 3, 2023
A MyLungCancerTeam Member

I had a simple chest X-ray that diagnosed it but e dry test imaginable after diagnosis. Each test provides more info.

November 3, 2023
A MyLungCancerTeam Member

Hi Lynn- I’m a Retired Nurse who worked exclusively for Hospice for 5 years as well as a Stage 3A NSCLC Patient. I think your Dr’s are ordering so many different tests is to cover their tushies! The only definitive diagnosis is a Tissue Biopsy or Wedge Resection & I’m definitely surprised that none of your Specialists have Ordered or done either procedure yet. Please contact your Pulmonologist as well as your Oncologist & ask why you haven’t received either procedure- I too have numerous ground glass & several nodules after my Lobectomy of my mrl with url wedges which also came back positive for NSCLC. I chose not to do Chemotherapy as Covid had just started & honestly, I’m glad I didn’t do it. I feel & look fine- everyone is very surprised when they find out I’m a Cancer Patient. Again please contact Oncologist & Pulmonologist & request a Tissue Biopsy which is easy & done Outpatient. I’m hoping for the best for you & am sending hugs 🤗

January 3, 2024

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